After they finally got the CPAP strapped to Averi's face Monday night, the alarms kept going off saying that there was a leak in the pressure. All it meant was that her mouth was hanging open and letting the forced air out instead of making it go down into her lungs. This was quickly fixed by putting a chin strap on to keep her mouth closed. Luckily it wasn't so tight that she couldn't get her beloved thumb in. She looked so silly I couldn't help but giggle.
At one point the nurse mentioned to another nurse that the doctor wanted someone to hold Averi in hopes that a change in position would help dislodge the junk in her lungs. I had been letting her sleep in her bed since they were doing so much stuff to her and was not too happy that the nurse hadn't bothered to tell me. Um...hello, I'm the mom; I will gladly hold my daughter that I haven't been able to hold for the last week. Give her to me NOW!
(This, of course, ended with her pooping on me twice and soaking the front of my pants. What can I say?)
This morning things were looking a lot better. Averi was much more awake and kept holding onto the top of her CPAP like she was worried it might come off or something. They turned down the pressure on her CPAP and when she handled it just fine they took it off completely later in the afternoon.
The only problem with having the CPAP off was that her sedation meds were turned off as well and she went right back into jittery withdraws. Hopefully it will subside in a few days.
OT was finally able to come this afternoon and do a few things with Averi. She's not stable enough to sit up yet but she did draw a few scribbles while lying down and shake the heck out of a squishy ball. I'd call that progress after not being able to move for over a week.