Today was the first day, since starting chemo in October, that neither Dan or I went to the hospital to see Averi. Now before you judge, Dan's mom was with her the entire day, so she wasn't alone...just parent-less.
We have lots of excuses - Dan spent the entire day taking apart and rebuilding our car engine, I bought and wrapped presents and made cakes, we are allowed to take a day off, blah, blah - but I have to admit that I feel pretty guilty. It's probably even worse because tomorrow is her birthday and we won't get over to the hospital until after church, so it will almost be 2 days without seeing her.
I know she knows we love her and it's not a big deal in the scheme of things, but I hate that we're even in a situation where we have to make that decision. Our family shouldn't have to be away from each other for such long periods of time. Why can't things just go back to being simple and lazy, you know, like in the days before cancer?
skip to main |
skip to sidebar
A journey through life with Down Syndrome
Latest Posts
Places That Care About Me
- Allergy Clinic
- Audiology
- Cardiology
- Down Syndrome Association of Central Ohio
- Down Syndrome Clinic
- Ear, Nose, and Throat
- Early Intervention
- Gastrointestinal
- Hearing Clinic
- Hematology/Oncology
- Neonatology Clinic
- Nutritionist
- Occupational Therapy
- Pediatrician
- Regional Infant Hearing
- Surgery Clinic (G-Tube)
3 comments:
Amen, Cancer sucks. IT sure can mess up your family life. Glad to here the treatments are doing well and hope after round 6, life can get back to normal for you
:( Understandable, but honestly I'm not sure of many other families who would be able to spend so much time with their little one in the hospital. You guys do great. I know that if we were in your situation, we couldn't with Dallin in school and riding the bus, both sides of our family never visiting us, etc. lol. We'd have to be home a lot more.
Averi is one lucky little girl!!
This broke my heart. I am so glad you shared it, though.
You are doing a great job. Truly, truly, truly, Tiffany. Don't feel guilty. (I know that is easier said than done, though)
Post a Comment