Easter in a Tomb

In true Easter tradition, we dyed eggs last night.  Averi felt well enough to help out a little and color on the eggs with a crayon.  Try to tell me she doesn't look like a hillbilly in this photo.

Dan started his Easter morning by cleaning up a poop covered Averi.  Once she was all clean, the nurse accidentally pulled out Averi's G-Tube, soaking her in feed and warranting another clean up.  Mmmm!

Averi is finally starting to feel a little bit better.  Her temperature has dropped enough to be normal while on tylenol (fyi: immunodeficient kids can't have motrin, so tylenol is all we've got).  They took her off the oxygen and IV fluids and even started half volume tube feeds.  They had stopped all food intake with concern that she might puke and aspirate on it, adding more fluid to the buildup in her lungs.

After getting platelets just a few days ago, she had to get them again today.  Apparently having a fever burns off platelets quickly so they gave her a high dose this time.  Hopefully it helps her little body feel better tomorrow.

Averi can't even leave her room right now so it seemed silly to dress her up for Easter, but I did it anyways - just for the pictures.

Happy Easter!